Prayers Needed Please [Archive]

dzney4lyf

07-30-2007, 01:48 AM

I just got back from an unexpected trip to NY. My mother told me on Friday that my cousin's two year old was in the hospital being treated for dehydration due to what was thought of as a virus with a possible UTI. Friday night my mother called back stating that test results came back showing a high increase in white blood cells and an xray showed a tumor on the baby's kidney.

By Saturday it was determined that the tumor was cancer and they were planning to remove the kidney on Monday. As soon as I got this call I jumped in the car. When I showed up at the hospital I was met by my Aunt who was crying hysterically. The doctor just came in with new info. The tumor was not attached to the kidney, yet part of the baby's adreneal gland and it is in-operable.

My cusion and his wife were in complete shock, not to metion the rest of my family. My family is one of those close knit families that not only come together in time of need but hang out on a regular basis. It was to no surprise when 15 of us stayed at the hospital through out the night in the waiting room just in case my cousin or his wife needed us.

More tests were preformed through out yesterday and today. Madisyn was diagnosed with neuroblastoma. A type of cancer in children that forms in nerve tissue. She is in stage 3. The cancer has spread to her veins. She will be transported tomorrow to a cancer hospital in NYC for immediate aggerssive treatment. The doctors want her to begin chemo as soon as possible. If the chemo goes well and shrinks the tumor there is a change of removing it. We are not sure if that will mean a cure or not, but we hope anything will work.

Right now there are so many uncertainties but we are all praying for the very best. Madisyn has her 3rd trip to Disney planned for next month. We are all hopping she makes it there. She was a "disney baby" from the start, a little souvenier from the most magical place. I'm hoping that magic will work.

Please keep not only Madisyn, but her mommy and daddy in your thoughts and prayers.

disneydreamer98

07-30-2007, 07:08 AM

Lori, my heart is breaking for your family. You know that I am sending extra prayers and pixie dust Madisyn's way!!!! :babydust: :pray2: :babydust: I'm only a phone call away if you need to talk....

Please keep us updated.

POCAHONTAS

07-30-2007, 07:30 AM

Lori, my heart and my prayers goes out to you, but especially to your cousin and his wife and little madisyn. A child is such a special gift from GOD, and i'm praying that all is well. I also will pray that GOD gives you all strength as a family, because your cousin will definitely need you guys. Keep us updated.

ChipNDale

07-30-2007, 08:05 AM

Lori... I am so sorry to hear this... I am sending extra prayers and pixie dust your families way. It always breaks your heart to hear of something like this happening to anyone. I will be sure to include all of you, especially Madisyn in my prayers! Please take care. :pray1: :babydust: :pray1: :babydust:

trickster

07-30-2007, 11:34 AM

Oh Lori, I am so sorry to hear the news.

My prayers and thoughts are heading acorss the pond to Madisyn and the whole family. :pray1::babydust:

GaRain

07-30-2007, 02:10 PM

Poor Disney princess. My thoughts and prayers are with your family, Lori.

uratoon

07-30-2007, 02:27 PM

Prayers for Madisyn and family.

My heart goes out to her.

MayBWeRMnt2B

07-30-2007, 09:07 PM

Lori, that's absolutely horrible! Many thoughts and prayers going to her, her parents, and your entire family. I wish you the best!! Let me know when the disney dates are for their trip!

SnwhtNdwrfs

07-30-2007, 09:23 PM

Lori- We will all be thinking of you and your family. What shocking news! Prayers and Pixie Dust coming your way.

dzney4lyf

07-31-2007, 11:41 AM

A small update....

Due to the insurance authorization process they would not transfer Madi yesterday. We waited the entire day hoping they would approve her transfer. It just seems as a day wasted. But on the good side, if there is one, her transfer was approved late yesterday afternoon. She should be on her way to NYC. Waiting to hear from my Mom to see if this is true.

disneydreamer98

07-31-2007, 01:06 PM

Lori, I hope that she is indeed on her way to NYC and getting the best care possible. Thanks for letting us know and please continue to keep us updated and we all continue to keep Madisyn in our thoughts and prayers.

dzney4lyf

07-31-2007, 03:57 PM

Thanks for everyone's prayers and support.

Madi has arrived in NYC. Tomorrow she will have a Hickman (central line for Chemo) placed. Chemo will begin on Friday.

Side Note- I emailed guest relations at Disney telling them of Madi's case. I asked if there were a chance "Mickey" could send a get well card or something to me for Madi. I'm planning on going to see her next weekend and thought this might brighten her day. I'm not sure if I'll get a response or not. I know this won't help her medically but I'm trying to do anything and everything I can for support to her and her parents. I hope they respond.

dzney4lyf

07-31-2007, 03:59 PM

Let me know when the disney dates are for their trip!

It doesn't seem like Madi will be making this trip.

disneydreamer98

07-31-2007, 05:06 PM

mini-v

07-31-2007, 05:17 PM

When I started reading the first paragraph of thread 1, my stomach just twisted. This was sounding too familiar. By the end of the post I was close to tears. My husband's family went through this last year with a 2 year old niece. Unfortunately, the cancer had spread too far and did too much damage to so many organs that she did not survive. I am currently monitoring another 2 year old girl in the same MN hospital. The most recent post said that one of her kidneys is terribly damaged and has to be removed.

I know of no other form of cancer that is so hideous and so evil. It affects small children and can go undetected for months. Only the sharpest of doctors take that one extra step on a child that complains of frequent tummy aches and checks for other sources.

I truly hope that Madysin will respond to treatment. I have some understanding of what you are all going through, and I will keep all of you in my prayers.

jediprincess

08-01-2007, 11:00 AM

:Lori I just saw this Im so sorry to hear this. My heart,prayers,and thought are so on there way to Madi and her family: Like Melis say Im also a phone call away if you need to talk.

PinkTink

08-01-2007, 05:29 PM

My thoughts and prayers are with you, Lori.

:HUG:

dzney4lyf

08-02-2007, 09:38 PM

The latest,

There is some very good news... test results came back and the cancer has not entered her brain. If it had reached her brain then there was only a 5% chance of recovery. There is hope.

Today she had four holes drilled into her hip bones to test her bone marrow. They expect the results tomorrow. If it has entered her bone marrow she has an expected survival rate of 20-30%. If it has not then her survival rate goes up to 80%. Right now we are just waiting in extreme anticipation for the results. When I talked to my mother this afternoon she said that they were pushing her first chemo treatment to today.

Mady is feeling a little weak, but she's still laughing and playing. The cancer center that she is at is wonderful. She has met some lovely friends and enjoys all the toys they have for her to play with. She even got to Build a Bear which is all she's talking about right now. I know she's a fighter I'm just praying that she continues to fight no matter what.

POCAHONTAS

08-02-2007, 10:37 PM

THAT'S WONDERFUL NEWS LORI! Madisyn definitely has cousin Lori's genes, and she is a fighter....That is just great! Blessings to all of you....

mini-v

08-03-2007, 03:02 AM

Lori, that is good news! I hope the next test come back with the same results. Please keep us updated.

trickster

08-03-2007, 04:20 AM

Thaks for keeping us updated, Lori.

Let's hope and pray the good news continues!

disneydreamer98

08-03-2007, 07:07 AM

That's great that they caught it before it entered her brain Lori! Now, we keep our fingers crossed that it hasn't entered the bone marrow....

Continuing good thoughts and extra prayers!!!!

ChipNDale

08-03-2007, 09:24 AM

Lori, I am glad to hear this latest bit of good news. I will continue to keep Mady and her whole family in my prayers!! I hope today brings good news as well! :pray1:

jediprincess

08-03-2007, 09:41 AM

Lori thanks for the update Im glad there is some good news to come out of all of this.

dzney4lyf

08-06-2007, 10:49 AM

EXTREMELY GOOD NEWS!!!!

All of Mady's results have come back. She is in stage 4, YET, all 6 doctors that are working on her all agree that she should recover! 90% survival rate!!!!

Mady has started her chemo, 6 hour drip, 1 hour break, then a 72 hour drip, 1 hour break, then so on, total of tree times. She will take a 2-3 week break between her treamtents to regain her strength. Once the tumor is small enough they will be able to remove it. They have estimated 4 months.

After surgery she will begin radiation therapy and start a treament of growth hormones to replace the lost bone structure. This will take approx 1.5 years to complete, but she is expected to recover.

Thank you again for all your prayers and support. Mady has a long raod ahead for her recovery but knowing that there is some light at then end of this tunnel is more than I could have ever asked for.

ChipNDale

08-06-2007, 11:02 AM

Lori, I am so glad to here such a high survival rate!! I will continue to keep you all in my prayers!!! What a little angel you all have!!!

trickster

08-06-2007, 11:07 AM

Lori, that is excellent news!

I agree with Stac: 'What an angel you have'!

The weeks ahead will still not be easy. You will all still be in my prayers & thoughts.

dzney4lyf

08-06-2007, 11:38 AM

Again, thank you. Today is the first day I've been in a good mood since last week. It's amazing how much impact a 2 year old can have on so many people.

ChipNDale

08-06-2007, 11:42 AM

Again, thank you. Today is the first day I've been in a good mood since last week. It's amazing how much impact a 2 year old can have on so many people.

Kids are an amazing thing and always have such a great and important impact. I am glad your mood has cheered up and I am glad that she will get to go to Disney Again!

disneydreamer98

08-06-2007, 01:55 PM

Excellent news Lori! :hug:

POCAHONTAS

08-06-2007, 02:40 PM

This is such wonderful news Lori...What an amazing miracle you have just witnessed:hug:

mini-v

08-06-2007, 02:43 PM

Lori, this is wonderful news. :applause: I'm sure there are many, long months ahead during which Mady and the rest of the family will learn many medical terms and procedures that NO ONE should ever have to know about, but with positive thoughts and support from family and friends, Mady should be back to just being a healthy, happy kid again a.s.a.p.

I also heard some really good things about the hosptial at which Mady is going for treatment from the parents of children also under treament for this disease.

mini-v

08-12-2007, 05:42 PM

Lori, any updates on Mady?

MayBWeRMnt2B

08-12-2007, 07:32 PM

That's great news Lori!!!

GaRain

08-13-2007, 09:49 AM

I am happy for happy news. I hope we continue to hear more along those lines.

dzney4lyf

08-13-2007, 10:03 AM

I have more news, but it's not good.

The cancer has spread to Mady's bone marrow. News of this came on Friday. I was in NY all weekend.

Mady is not handling the first dose of chemo well. She's very sick and is barely eating. Since chemo lowers the immune system no one has been able to visit Mady.

Right now it is just her mother and my Aunt with her. Her father, my cousin, had to return to Albany last night due to work. He had to leave his little angel behind. I feel horrible for him. He hates not being there but he has to work in order to pay for bills. Even thought they are staying at the Ronald McDonald house the costs of that alone are 1050 a month, not mention any food or personal products. The medical expenses are through the roof. The insurance will pay 75%. Once said and done they are looking at about 100 to 150 thousand owed to the cancer center. My cousin's wife has alredy put her car up for sale and my family and I have been sending money to my cousin and his wife to help.

I've been thinking of ways to try and raise money for them. If anyone has any ideas please share. I am not one to ask for money so I don't really have any good ideas of my own.

ChipNDale

08-13-2007, 10:32 AM

disneydreamer98

08-13-2007, 05:08 PM

They will need their family more than ever at this difficult time Lori and they are lucky to have you. I will have Jim's Mom add Mady's name to their prayer list....every little bit can help.

dzney4lyf

08-14-2007, 01:49 PM

no news, just an updated avatar.

GaRain

08-14-2007, 03:11 PM

What a cute avatar, Lori.
Mady is in my thoughts and prayers - I hope that things improve.

disneydreamer98

08-14-2007, 03:35 PM

She is too cute Lor! I looked at Wal-Mart today and they do carry a Princess pillowcase, but they were all out! I'm gonna check another one and if I can't find it I'll have my Mom check hers! They did however have a Tinkerbell pillowcase in stock so that might be an alternative if you think she'd like it!

mini-v

08-14-2007, 04:26 PM

My husband's family have a golf tournament and a silent auction to raise money for Children's Hospital in Mlps.; the hospital where Julia was treated. This is the second year it will be held. It's difficult to raise money for a particular child since most of the big money is donated by corporations to huge organizations.

Mady's reaction to the chemo is the same as what I've seen for two other children with this disease. It's tough to see them be so sick. Hang in there. My prayers will include Mady and her family.

trickster

08-15-2007, 07:20 AM

I'm sorry to hear things aren't good at the moment.

We are still thinking about Mady & the whole family and sending prayers across the Atlantic and we hope things will improve real soon.

R&A

dzney4lyf

08-17-2007, 03:39 PM

In an attempt to try and raise spirits I have come up with an idea for Jay and Wendy, Madisyn's parents.

Please feel free to type any note, poem, prayer, story, wish.... anything you would like here in this thread. I will cut and paste these things into word. At the end of August I will print out everything everyone has submitted and paste them into a scrapbook to give to Jay and Wendy. I know these things won't help cure the cancer, but I'm sure it will help Jay and Wendy keep the strenght to help her fight her way back to health.

disneydreamer98

08-21-2007, 04:47 AM

Lor, here is a little something that I composed quickly in case you finished up the scrapbook before we get back home. I cannot tell you how often Mady is in my thoughts...my heart and prayers for strength during this time go out to your family.

She’s a little girl that I don’t even know,
Yet, she tugs at my heartstings so.
That adorable face and sparkling eyes,
A smile of an angel nobody denies.

I will be spreading Mady's story throughout our travels at Disney World and will get the package in the mail to you as soon as we return! Continued prayers and pixie dust to Mady and your family! :babydust:

dzney4lyf

08-22-2007, 04:35 PM

thanks Melis, that was very cute.

dzney4lyf

08-22-2007, 04:45 PM

OK, here are some updates on Madi. I haven't posted any in awhile...

I talked to Madi's father on Monday. I called to see how things were going with this little princess. He seemed to be in good spirits considering the situation. Today is his wedding anniversary. He said that he will be working double shifts 2 weeks straight then taking a week of unpaid leave to go spend time with his wife and Madi.

As for Madi, she started her next round of Chemo this morning. She is doing this partially outpatient. She will go for infusions during the day to the hospital and then go "home" (ie the Ronald McDonald House) at night for additional infusions given to her by her mother. She had a rough recovery from the first round of chemo and had to have 2 blood transfusions yet she bounced back. If she does well with this round they may let her come home (meaning back to NY) for a weekend in September!!!

Her tumor has begun to shrink. The doctors are hopeful that they will be able to remove it in October. Once removed she will get a chance to recover then onto more chemo and eventually a bone marrow transplant. They might be able to release her for a longer visit for the holidays some time mid december... we are all keeping our fingers crossed!!!!

She has lost a lot of weight and 90% of her hair. I have pics of her but they are home, not here at work. I'll try posting them as soon as I get a chance.

Well, that's pretty much it, for now at least. Once there's some more updates I'll post then.

MayBWeRMnt2B

08-22-2007, 07:54 PM

she's still in my thoughts and prayers!!!! I'm glad she's on to her second dose of Chemo!!

ChipNDale

08-23-2007, 08:50 AM

Lori,
I am continuing to keep Madi and all of her family in my thoughts and Prayers... Please know that we are all here for you and willing to help out in any way possible. I will try and think of some things for your scrapbook and get it posted this week! Please take care of yourself and know that God is doing his best at taking care of that little Angel Madi...:hug:

dzney4lyf

09-04-2007, 10:15 AM

Here is a website that was created that gives updates on Madi. She's not feeling so well. Todd and I are going to try to get down there this weekend to see her if possible.

http://www.caringbridge.org/visit/madisynbenoit

mini-v

09-04-2007, 12:38 PM

Thanks for the web page address for caringbridge. That makes the 4th child that I've bookmarked to get updates from caringbridge. It was good to hear that she is responding well to the chemo, even though the side affects are crummy to say the least.

disneydreamer98

09-04-2007, 01:05 PM

dzney4lyf

09-04-2007, 01:28 PM

I will be book marking the site as well Lori and keeping an eye on Madi. I am hoping to make it to the post office either tomorrow or Thursday to get that stuff in the mail to you. If you are going to visit her, will you be staying at your parents? Let me know and maybe I can make an extra effort to get to the post office tomorrow and then I could just send the stuff directly to your parents house so it gets to you for the weekend.

hey melis.

if we are able to go there we will be leaving right from our house. NYC is only an hour north from my house. my parents is another 2-2.5 hours north from there. i wont actually be back to NY(Albany) until sometime in October.

dzney4lyf

09-06-2007, 11:38 PM

good news.... my baby girl gets to come home!!! well, for a weekend visit. she will go back to NYC on sunday and start her 3rd round of chemo on monday.

i would have written sooner but i've been on the phone all night with family celebrating the good news.

i'll post some pics when i get back from NY.

thank you to everyone for your continued prayers... they are working!

LynnieMouse

09-07-2007, 04:28 AM

enjoy the weekend with your little angel, my thoughts and prayers are with her and her family

:pray1: :pray1: :pray1: :pray1:

disneydreamer98

09-07-2007, 07:39 AM

I read the great news on Caringbridge last night Lori!!! :applause: I bet Jay can hardly control his excitement! Safe travels to them!

ChipNDale

09-07-2007, 08:51 AM

Lori,
I am so glad to hear that Madi is coming home for a weekend. It will be nice for her to see a familiar place and some familiar things around her. I continue to keep her and all of you in my Prayers. Thanks for keeping us updated! :hug:

dzney4lyf

09-07-2007, 02:22 PM

it's killing me sitting here at work. time is going by so slow!!! but i do get to leave at 4 today instead of 5...

hope to be on the road shortly after that.

dzney4lyf

09-10-2007, 10:19 AM

well, we had a good weekend. it was so good to see madi, jay, and wendy again. everyone was doing so well!!! i have some pics at home which i hope to post soon.

melis, the package didnt get here yet, but madi knows she has something coming from her disney friends and she is very excited about it. if her chemo goes well this week she might be able to come back home next week. i won't be there (we're leaving saturday morning to go to SC) but once i get it i'll send it right to her house so she'll have it waiting for her.

she's such a cuite and i'm so glad i had the chance to see her again!!! she's is one strong girl. she was in great spirits. it was awesome to see that!

trickster

09-10-2007, 11:28 AM

I'm glad you all had a great weekend!

Let's pray and hope things continue to improve and Madi is allowed home again real soon!

disneydreamer98

09-10-2007, 12:35 PM

melis, the package didnt get here yet

Ummmm, that's because I just took it to the post office this morning. I am so sorry! I planned on getting it in the mail last week, but my life just didn't cooperate! :rolleyes4:

Glad to hear you guys got to see and spend some time with Madi and that she was doing so well! I know they are headed back to the hospital today to start her chemo so I'm keeping my fingers crossed that all goes well!

disneydreamer98

09-10-2007, 12:36 PM

I did take photo's of the stuff before I sent it out so as soon as I get a chance to upload them from my camera I will post them here for everyone to see!

dzney4lyf

09-10-2007, 03:59 PM

Ummmm, that's because I just took it to the post office this morning. I am so sorry! I planned on getting it in the mail last week, but my life just didn't cooperate! :rolleyes4:

Glad to hear you guys got to see and spend some time with Madi and that she was doing so well! I know they are headed back to the hospital today to start her chemo so I'm keeping my fingers crossed that all goes well!

not a big deal melis, with madi having chemo until thursday this week it might be better that she gets the stuff this weekend to lift her spirits back up!

this chemo shouldn't be as bad as the first two, meaning her blood levels should stay higher than before, but this chemo is a scary one. there is a chance madi could lose her hearing. the doctors explained to her parents a lot of children will go deaf or have a great loss of hearing once they enter the third round of chemo. it would be a permanent loss but we are praying for the best

dzney4lyf

09-10-2007, 04:01 PM

but my life just didn't cooperate! :rolleyes4:

i hope all is ok!

MayBWeRMnt2B

09-10-2007, 09:10 PM

let us know how her Chemo works out! We're all praying for the best!!

dzney4lyf

09-11-2007, 02:19 PM

GOOD NEWS....

Madi's bone marrow tests came back... they didn't find any cancer in her bones!!!! This is awesome news. The chemo is working!!!!!

SnwhtNdwrfs

09-11-2007, 02:20 PM

That is great news!!!

disneydreamer98

09-11-2007, 04:23 PM

GOOD NEWS....

Madi's bone marrow tests came back... they didn't find any cancer in her bones!!!! This is awesome news. The chemo is working!!!!!

AWESOME news Lori!!!! :yahoo:

MayBWeRMnt2B

09-11-2007, 08:58 PM

that's amazing news! Yay!!

PinkTink

09-11-2007, 11:11 PM

Oh my gosh that is WONDERFUL!!! I'm so happy for Madi!!!

mini-v

09-12-2007, 02:46 PM

That is super news! :applause:

ChipNDale

09-12-2007, 04:53 PM

Wow!! What great news!!! Thanks for Sharing Lori!

seriouslydw

09-12-2007, 07:07 PM

That's such great news!!!!!!

trickster

09-13-2007, 09:23 AM

That is excellent news, Lori!!

Thanks for keeping us updated!

disneydreamer98

09-17-2007, 06:24 PM

Jay and Wendy had to take Madi back to NYC yesterday because she was getting sick all weekend. She was dehydrated and was even throwing up some blood. The blood was apparently from her chemo and a reaction from something that was included in the last round she just finished. She wasn't readmitted but they were working on getting her fluids replenished and nausea medication to help with her tummy.

Just wanted to update everyone. Lori is on vacation this week and I'm sure she would like to keep the prayers coming for Madi!

Hang in there Madi! :hug:

MayBWeRMnt2B

09-18-2007, 07:18 AM

Hang in their Madi!

LynnieMouse

09-18-2007, 09:04 AM

poor Madi

big hugs

trickster

09-18-2007, 01:28 PM

I'm sorry to hear this latest news.

My prayers and thoughts contiune for Madi and the whole family.

ChipNDale

09-18-2007, 02:10 PM

I continue to keep Madi and her WHOLE family in my prayers.. Here is hoping things get much better.. Take care Madi!!

mini-v

09-19-2007, 05:16 PM

In my experience with 2 other children with this disease, this ugly roller coast ride seems to be par for the treatment. Keeping Madi in my prayers.

dzney4lyf

09-23-2007, 11:40 AM

thanks melis.

we kept in contact with madi's grandpa (my uncle) while we were on vacation. she's feeling better now. thank god!

even through all of this she has stayed strong. to tell you the truth... i was scared to see her a few weeks ago. after all that she has been through she looked awesome! yes she looked sick, but not what i expected. the balding hair and her "tubies" which BTW she is proud of and shows to everyone.... that was tough to take in, but her laughter, the look of excitement in her eyes, the pure joy of her being home... she truly is my hero.

trickster

09-23-2007, 12:11 PM

It is so encouraging to hear how strong Madi is and how this rubs off on the rest of the family!

We all pray and hope this will help her pull through and make a full recovery in time to come.

dzney4lyf

09-27-2007, 09:48 PM

I'm not sure how to even go about wording Madi's update.... so here is her mother's latest post from her website... Please send extra prayers her way...

THURSDAY, SEPTEMBER 27, 2007 04:50 PM, CDT Hi everyone,
Well today we met with surgery to go over everything for Madisyn's appointment on Monday. Not very good news. Dr. LaQuaglia showed us Madisyns scan and her aorta is indeed in the center of this huge mass. Also, he is removing her left adrenal gland and lymph nodes where the cancer started and he may have to remove her left kidney. I guess the tumor has done more damage then we were led to believe. He also believes that it may have slightly damaged her right kidney which may cause problems later on. He said this surgery is life threatening through the entire surgery and for a few days after. Which I assume all surgeries are life threatening. He is going to try to remove the entire tumor but is afraid where it encases the aorta due to high risk of bleeding since it is a major artery. If he is unable to remove the entire tumor Madisyn will just have to be treated with more rounds of chemo. Unfortunately Madisyn's incision is going to go on the left side of her chest under her arm and curve towards her belly button. She is going to have a chest tube put in because they may have to deflate her lung to get to the entire tumor. She will have an NG tube in her nose, breathing tube in her throat and a catheter. They suspect she will be in the ICU in Cornell (across the street from Sloan) for a couple days before moving her back to the Pediatric unit. She will not be getting an epidural but IV pain meds. They suspect that she will sleep for at least 2 days after surgery and they will monitor her very closely. They will not remove any tubes until they are sure she is stable, breathing on her own and her lung is completely reflated. I happened to ask what the survival rate is and Dr. LaQuaglia said with this type of aggressive stage IV neuroblastoma survival is about 50%. Not very good odds but we are hoping for the best. I am completely devasted by the news today and everytime I look at Madisyn I break down crying. I don't know how I will ever emotionally prepare myself to see her after surgery on Monday. Thank GOD we will have our family with us!!! This is going to be the hardest week of my entire life!
Madisyn on the other hand is her happy, cheerful self. She has no idea what is to come. I think that may be a good thing. She hopefully finished her stem cell harvest today. They will let us know tomorrow at 11am if she is done or needs to come back yet again tomorrow. They collected 4.4million cells yesterday but they like at least 7 million. We will head for home once we get the phone call. Look forward to seeing you all. Please, Please keep Madisyn in your prayers! We will get through this!!!!
Love you all,
Wendy

disneydreamer98

09-28-2007, 02:14 AM

I know Lor...I read Wendy's post on Caringbridge last night and I couldn't even find the words to say anything in the guestbook. I know this must be weighing on your mind heavily because I don't even know Madi and I know how much it's bothering me. Please know that I am asking for prayers from everyone I know for your family.

mini-v

09-28-2007, 06:38 AM

I read the message on Caringbridge this morning. This is heartbreaking news. I will continue to pray that the next chemo treatment will turn this around. Madi has a tough battle on her hands, and she and her family will need all of our support. Just keep swimming!

trickster

09-28-2007, 08:12 AM

I have just read it myself and things don't sound good at all.

Let's all stay positive and pray hard and hopefully Madi will pull through.

Annie

09-29-2007, 01:55 PM

My prayers and thoughts are with the whole of the family and madi at these difficult times.

disneydreamer98

09-30-2007, 08:12 AM

I spoke with Lori yesterday and Madi ended up getting sick and was admitted to the local hospital. Lori was still hoping they'd be able to see her, but it all depended on how Madi was doing. Hopefully they will be able to make it back to Manhattan and have the surgery go on as scheduled tomorrrow morning. Lori thought that the surgery was scheduled for 9 AM, but wasn't sure how long it would last for.

disneydreamer98

09-30-2007, 08:42 PM

I thought I'd give another update on Lori's behalf since they probably won't get back from NY until late and I just read the latest news on caringbridge about Madi. It looks like the surgery is not going to happen tomorrow. They are still in Albany at the medical center getting her antibotics to fight her latest infections and getting her fluids replenished. They are hoping that she will be well enough to travel tomorrow back to Manhattan so they can reschedule the surgery when she's doing better. :babydust: :val1: :pray2: are all coming your way Madi!!!

dzney4lyf

10-01-2007, 09:51 AM

thanks melis,

you've pretty much summed it up... .once i hear something today i'll post any updates as they become available.

as for her surgery... when it does happen... it should be 6-10 hours... could be longer once they get in there and actually see what's going on. they will give updates every 2 hours of her progress... so when it comes to that time.. i will give everyone updates when i get them.

One good thing that came out of all of this... friday night... she was in such good spirits... she was laughing and playing up a storm. she was walking around all by herself. she refused help. which is amazing since she hasn't even been able to stand up for the majority of her treatments. my uncle (her grandpa) called my mom friday after he left his son's house... he was so happy. he was shocked to see how well she looked. he kept saying her got his baby girl back....

disneydreamer98

10-01-2007, 10:20 AM

No problem Lori. I will anxiously be awaiting your update.

dzney4lyf

10-01-2007, 10:32 AM

only update so far...

madi is still at albany med, they are waiting for her blood work to come back. but she hasn't had a fever since last night.

ChipNDale

10-01-2007, 10:57 AM

My prayers still continue to be with Madi and her family. Thank you for keeping up update Lori...

dzney4lyf

10-01-2007, 07:13 PM

madi sill be spending another night at albany med. sloan has not contacted albany med and they would like to keep her there until they are able to trasnfer all her med recds.

as of right now, she is scheduled to go by ambulance back to sloan tomorrow.

disneydreamer98

10-02-2007, 06:04 AM

Lori, I hope they will be able to make it back to Sloan today.

dzney4lyf

10-02-2007, 09:11 PM

well, madi made it safely back to NYC. thank god she's out of albany med!!!

disneydreamer98

10-04-2007, 07:12 AM

I only signed onto my computer long enough last night to check Caringbridge for an update on Madi. Glad to hear they made it back to Sloan safely and that the surgery for the new port for her tubes was thankfully able to go into her chest! Keeping my fingers crossed for good news on the bone marrow results!! And I hope they will be able to move her big surgery date up...even if it's only a day....how sad that she may have to have it done on Halloween. I know it's a necessity, but the thought of a 2 year old being in the hospital having surgery on Halloween just doesn't seem right. :no:

:babydust: Keep fighting Madi! :babydust:

MayBWeRMnt2B

10-04-2007, 09:21 AM

I'm glad Madi got back safely to someplace she can get a LOT of help!

Keep fighting Madi!!!

mini-v

10-08-2007, 01:59 PM

:applause: Yahoo! Just read the update on Madi's site. A little good news is so uplifting.

disneydreamer98

10-08-2007, 02:18 PM

:applause: Yahoo! Just read the update on Madi's site. A little good news is so uplifting.

Thanks V! I hadn't visited the site yet today! Clean bone marrow results!!! That's WONDERFUL!!!! :applause:

dzney4lyf

10-29-2007, 07:48 PM

i know i haven't posted here in quite some time... but i just wanted to bring this thread back up...

madi will be going into surgery on wednesday, halloween. please keep madi and her family in your thoughts and prayers.

trickster

10-30-2007, 04:18 AM

I sometimes check in and click on the link to see if there is any further news.

disneydreamer98

10-30-2007, 06:43 AM

I read the update yesterday Lor and I was cringing at the news that Madi is suffering from a touch of a cold. I hope that when they meet with the surgeon this morning that all will be okay and they will still be able to go with the scheduled surgery for tomorrow. I know how badly they want to get past this next stage and get Madi on her way to recovery! You know that I am always keeping her in my thoughts and prayers and tomorrow will be coming in extra large doses!!!

Disneylady

10-30-2007, 01:25 PM

Prayers & Pixiedust for Madi & all the family.................... she will be in everyones thoughts
:babydust: :babydust: :pray1: :pray1: :babydust: :babydust:

disneydreamer98

10-31-2007, 06:57 AM

I read Madi's update on CaringBridge last night and all is a go today for the surgery! :applause: They should be arriving at the hospital right now. Go get em' Madi we are all in your corner!!!!!

LynnieMouse

10-31-2007, 07:43 AM

:pray1: :pray1:

prayers and thoughts are with you

:love6: :love6: :love6: :love6: :love6:

disneydreamer98

10-31-2007, 08:54 AM

An update was just posted on CaringBridge by Sherry, Madi's Aunt. Here is what she wrote:

Morning everyone,

My mom just called me. They are just about ready to wheel Madisyn into surgery. Wendy and Jay are still with her at the moment. My mom said that everyone was doing well. Madisyn was in good spirits and playful, too. :) We're almost there. Not sure if i'll hear from Wendy after they leave her or if she will wait to call me when they have an update, but i'll be sure to post something each and every call. :)

Thanks for the prayers, support and love for Madisyn, Wendy and Jay!

Love,

Sherry

Annie

10-31-2007, 09:58 AM

All my prayers and thoughts are with you today and everyday.

disneydreamer98

10-31-2007, 10:36 AM

Another update on CaringBridge by Sherry. Apparently Madi didn't get taken to surgery as early as they thought she would....

Wendy just called me. Apparently they never came to get Madisyn until 10 o'clock. So, surgery's only been underway for 30 minutes. Wendy said that when they came in they gave Madisyn something to calm her down, which made her scared, so she started crying. But whatever they gave her made her loopy, so she would start laughing, then crying again, then laughing. When the anesthesia was given to her, Madisyn laid her head on her pillow and closed her eyes. Her 2 doggies were right beside her. Wendy and Jay gave her kisses. As they wheeled her off, Wendy said you could see Madisyn's hand and leg in the air because she was moving them. :)

So, they will probably get an update around noon time.

They're eating breakfast right now. Someone is supposed to come and give them a tour of where Madisyn will be staying after her surgery. Wendy doesn't think she'll be up to it, so Jay will get to make note of all the details. :)

That's all I have. I'll update you soon.

Love,

Sherry

disneydreamer98

10-31-2007, 02:11 PM

This latest update on CaringBridge was posted around 2 PM EST by Madi's Aunt Sherry. Hopefully the surgery is underway by now.

WEDNESDAY, OCTOBER 31, 2007 12:57 PM, CDT

Hi everyone,

Wendy called me about 10 minutes ago. Madisyn is doing well. They basically did all the prep work since 10 am. She's been given the full anesthesia, all her ivs and tubes are hooked up and inserted and they installed the mediport. They have to adjust the room temperature next and then the major surgery will start. Please continue to pray for her.

Love,

Sherry

disneydreamer98

10-31-2007, 10:17 PM

GREAT NEWS TO SHARE!!!!

Lori called while we were just finishing trick-or-treating to tell the great news about Madi's surgery! She said she had tried posting an update, but that she was having trouble so I told her I would check once we got home and post the update if she still hadn't been able to. I thought it best to just once again copy and paste Sherry's post on CaringBridge so I am sure to get all the facts straight. So here it is.....

WEDNESDAY, OCTOBER 31, 2007 07:54 PM, CDT
Wendy just called. Surgery is complete. The surgeon just spoke with them. Madisyn did really well. They did save her kidney. They removed 99% of the tumor. There is a milimeter coating on her aorta and the vessels that run to the kidney. Because it's so little, he couldn't shave that close. But he did say that the rest of her chemo/radiation should eradicate (sp?) it all!!!!! He also didn't notice any sign that it had spread to her lungs or other areas. She will be on a breathing tube for a while, but it's normal procedure. She is stable. Wendy will wait with Madisyn and go via ambulance with her to the hospital across the street. Jay and the family will go across the street and await Madisyn's arrival and setting up in ICU. Once she's settled everyone will get to see her.

Thank you everyone for your prayers, thoughts, love and words of encouragement. They truly worked once again. Our girl did it!! Go Madisyn! We are so happy for you and proud of you. Wendy and Jay - good job today. I don't think any of us can imagine what you've gone through today, but as predicited, you all came through with flying colors!!!! xooxoxoxoxoxxo

Love,

Sherry

Way to go Madi! :cheerleader4:

LynnieMouse

11-01-2007, 05:05 AM

that is such great news, well done to all.

Keep us updated!!!!

:cheerleader4: :cheerleader4: :cheerleader4: :cheerleader4: :cheerleader4: :cheerleader4: :cheerleader4: :cheerleader4: :cheerleader4: :cheerleader4: :cheerleader4: :cheerleader4: :cheerleader4: :cheerleader4: :cheerleader4: :cheerleader4:

GaRain

11-01-2007, 09:34 AM

I love hearing good news like that!!!

disneydreamer98

11-01-2007, 11:40 AM

Today's update on CaringBridge by Madi's Aunt Sherry...

Good morning, everyone!

I just spoke to Wendy. She sounds tired, but good. She got about 4 hours or so of sleep and Jay slept pretty much all night. They had a couple of scary moments in the beginning. Apparently her oxygen level should not drop below 95 and a few times it dropped to 82. But they fixed it and she's just fine. She is quite the fighter. She was alert enough to respond last night. Wendy asked her a question and Madi shook her head no a few times. Turns out in the process she dislodged the tube in her chest. XRay came in at 6am to verify that and they were able to set it back up. She keeps waking up. They gave her 2 mgs of fentenal (sp?) and she kept waking up, increased it to 3 mgs, kept waking up, increased to 4 mgs, kept waking up, added atavan (sp?) to the 4 mgs of fentenal and that seems to keep her "down" so to speak. She is still able to respond by squeezing her hand or opening eyes, but for the most part she's sleeping. Her lungs are clear of fluids. The respirator is set at 22 and Madisyn is breathing at 29 or 30, so she is breathing slightly over the respirator. It appears that they may be taking her off of it either today or most likely tomorrow. So much for being on it for a week!!! She's also peeing like a champ, too! They'll be increasing her fluids today and then she'll be given a diuretic before being taken off of it. They will try and remove some of the tubes before waking Madisyn up, as well. This will help prevent Madi from trying to pull anything out herself. They will probably be moved back to Sloane in the next few days. The nurse said that Madisyn "came through this swimmingly"! :) Of course! LOL

They do not have access to anything in the room they are in, phones don't work well, no internet, etc. So, Wendy will continue to update me as needed and when they are back at Sloane, she'll do some posting!

Thanks again to everyone!!

ChipNDale

11-01-2007, 01:21 PM

:cheerleader4: What great news!!! :cheerleader4: I will continue to keep Madi and her family in my prayers!!! Thank you for sharing with us Melis!

trickster

11-01-2007, 02:02 PM

Thanks for keeping us updated, Melis and I just want to echo everyone else by saying

"What Great News"!!!

dzney4lyf

11-01-2007, 02:15 PM

thanks melis.

i've been having trouble trying to post for the past two days.. so let's see if this one works..

thanks to everyone for all the prayers. they have been answered and madi is recovering nicely.

yesterday was a very long stressful day for myself i cannot imagine how it must have been for jay, wendy, and madi.

through out all of this i have learned that with determination miracles can happen.. madi is living proof. she is a living miracle.

thanks again to everyone.

POCAHONTAS

11-01-2007, 03:00 PM

What great news, Lori. I am so happy to hear that madi is recovering nicely. Please keep us updated as she continues to get better. May you and your family be blessed all of your days

Disneylady

11-01-2007, 07:33 PM

Fantastic news..........so happy to hear it...
Keep strong Baby:hug:

Grumpy

11-01-2007, 07:40 PM

We were so happy to hear the news last night. What a relief.

trickster

11-21-2007, 03:09 AM

I was just passing by and catching up on the lastes news from the website:

http://www.caringbridge.org/visit/madisynbenoit

disneydreamer98

12-01-2007, 03:36 AM

I just wanted to share the news that I read on Madi's Caringbridge site last night.....They got to go home for the weekend!!!! I can only imagine how excited all of them are! The thought of Madi being able to sleep in her own bed and play with her own toys brings a huge smile to my face!

SnwhtNdwrfs

12-01-2007, 05:59 PM

That is good news!

mini-v

12-02-2007, 05:05 PM

Let's hope she gets to stay at home for as long as possible.

disneydreamer98

12-03-2007, 07:04 AM

Let's hope she gets to stay at home for as long as possible.

I believe that they have to be back in New York City tomorrow, but I'm sure they are thoroughly enjoying their time at home with family and friends!

dzney4lyf

12-08-2007, 08:23 AM

removed for personal reasons.

disneydreamer98

12-08-2007, 08:58 AM

What WONDERFUL AMAZING news!!!!!! I am so happy for Madi and your family Lor! What a fantastic Christmas present!!!!

MayBWeRMnt2B

12-08-2007, 09:07 AM

That's amazing news!!!! Yay! That's the BEST christmas gift ever!!!

PinkTink

12-08-2007, 09:52 AM

I'm so happy for Madi and your family, Lori!!!! Way to go, Madi!!

dzney4lyf

01-14-2008, 11:14 AM

well, it's been quite some time since i last posted here.

things aren't geoing the way they were supposed to. jay and wendy got a call shortly after getting back home stating that Madi wasn't cancer free as they had thought.

she went thru another round of chemo (round # 6) last week, scans showed that Madi still has some of the tumor inside her. it's been a total roller coaster of emotions.

Madi will be going through another surgery on Thursday then one additional round of Chemo. This is the last treament option for Madi. Please pray that all goes well for her and her family.

Disneylady

01-14-2008, 12:48 PM

PRAYING FOR THAT MIRACLE
KEEP STRONG LITTLE DARLING
:pray2: :pray2: :babydust: :babydust: :babydust: :pray2: :pray2:
:hug: Maggie xxxx

trickster

01-14-2008, 02:00 PM

Awww - that is such a shame as the last we heard Madi was doing really well.

Prayers :pray2: and thoughts:babydust: continue to be with Madi and the whole family.

disneydreamer98

01-14-2008, 02:20 PM

Lor, I read the Caringbridge update earlier and was going to come here and post about Madi's upcoming surgery on Thursday, but I see you've already done that. My heart goes out to your entire family especially Jay and Wendy during this difficult time. I pray that some good news will come soon so that Wendy and Madi can be back home with family soon to help them both recover and rest. I can only imagine how much the stress is taking it's toll.

You know that I will be sending out extra doses of prayers and pixie dust on Thursday. Keeping you all in my thoughts....

disneydreamer98

01-15-2008, 07:12 PM

I just read Madi's Caringbridge page and her surgery has been moved up to tomorrow! Surgery is schedule for 8:15 AM so everyone send the good vibes and prayers!!!

It is going to be a pretty major surgery since they will be removing cancer from a few different areas. Turns out that she has a couple of lymph nodes that have cancer in them, as well as an area of soft tissue between her aorta and the vein to her liver. They will have to make a similar incision on her right side to remove these areas.

This little girl and her family are in need of as much support and prayers that they can get. Go get that dreaded disease Madi!

MayBWeRMnt2B

01-15-2008, 09:45 PM

Prayers coming your way!!!

seriouslydw

01-16-2008, 07:06 AM

i'll definately be thinking of Madi and her family today

ChipNDale

01-16-2008, 08:13 AM

Lori,
I am sending lots of prayers and Pixie dust Madi's way and your whole families way. May God keep Madi in his arms throughout the surgery! :pray1:

Disneylady

01-16-2008, 12:43 PM

Thinking of Madi & all her Family today & sending all the love & prayers in my heart
:babydust: :babydust: :pray1: :pray1: :pray1: :pray1: :babydust: :babydust:
:love5: :hug: :love5: :hug: xxxxxx Maggie

dzney4lyf

01-16-2008, 01:23 PM

update:

madi is doing well do far.

they have removed a portion of the soft tissue and are now moving on to the lymph nodes.

dzney4lyf

01-16-2008, 02:04 PM

the surgery is done.

madi is doing well.

they were able to remove 2 lymph nodes and some soft tissue.

they did find another spot which they could not remove. They have "marked" it so if the biopsy comes back that it is cancer, they can hit it with radiation.

seriouslydw

01-16-2008, 02:56 PM

very good to hear that she's doing well after surgery

disneydreamer98

01-16-2008, 03:00 PM

I just got home from Parker's school and came directly to the computer to check for an update on Madi from her Caringbridge site....I see that Lori has already been here to update everyone.

Let's hope that this surgery was a complete success and Madi is on her way to beating this!

MayBWeRMnt2B

01-16-2008, 08:51 PM

I am glad to hear that Madi is doing well after her surgery!

disneydreamer98

01-17-2008, 06:10 AM

I hope Madi as well as Jay and Wendy had a restful night...

trickster

01-17-2008, 10:26 AM

Thanks for the updates - I keep checking to see how Madi is doing too.

Disneylady

01-17-2008, 12:20 PM

Thanks for the updates - I keep checking to see how Madi is doing too.
Me Too

MayBWeRMnt2B

01-26-2008, 11:32 AM

I saw on the website that Madi had her 7th round of chemo is complete! And she was doing good, so they get to go home for the weekend!!!

Yay!!!! Congrats Madi!!!

Disneylady

01-29-2008, 12:47 PM

I saw on the website that Madi had her 7th round of chemo is complete! And she was doing good, so they get to go home for the weekend!!!

Yay!!!! Congrats Madi!!!

So very glad to hear that.............................Thanks for letting us know Jeanne

trickster

05-06-2008, 05:50 AM

You know, I was thinking of Madi yesterday and how she is doing...

I was going to look at the link in Lori's signature, but it's not there anymore?!

Do we have any news?...

disneydreamer98

05-06-2008, 06:29 AM

You know, I was thinking of Madi yesterday and how she is doing...

I was going to look at the link in Lori's signature, but it's not there anymore?!

Do we have any news?...

Well there hasn't been an update on her CaringBridge site since last week. Wendy and Madi are still in the City staying at Ronnie's. On May 27th she will start her third round of chemo to hopefully completely knock on what risidules are remaining!

On a good note.....Madi has been granted a trip to WDW by Make a Wish Foundation and hopefully she will be feeling well enough to plan that soon! :yahoo:

disneydreamer98

05-06-2008, 06:30 AM

BTW Rich...it scared me when I saw this thread on the top page. I was praying that there wasn't bad news.

trickster

05-06-2008, 06:32 AM

Well there hasn't been an update on her CaringBridge site since last week. Wendy and Madi are still in the City staying at Ronnie's. On May 27th she will start her third round of chemo to hopefully completely knock on what risidules are remaining!

On a good note.....Madi has been granted a trip to WDW by Make a Wish Foundation and hopefully she will be feeling well enough to plan that soon! :yahoo:

That's great news! :applause:

BTW Rich...it scared me when I saw this thread on the top page. I was praying that there wasn't bad news.

Sorry, I was looking for the link but couldn't find it!

disneydreamer98

05-06-2008, 06:38 AM

Sorry, I was looking for the link but couldn't find it!

For future reference....

http://www.caringbridge.org/visit/madisynbenoit

BTW Rich...you can have the updates automatically sent to your email if you post a reply in the guestbook.

trickster

05-06-2008, 06:45 AM

Thanks! - I've book-marked the page.

dzney4lyf

05-07-2008, 10:21 AM

hey guys... things have just been crazy at work.. so i havent been around much...

as for madi... the news is not so great. yes we are all remaining very hopeful... but her cancer has spread. per the docs (who havent been very honest... jay and wendy had no clude madi still had some evidence of disease until they were told just a few days ago... the docs new about this since feb!!) they say that they will be able to remove it with surgery... yet wasnt this already done with her first two???

the family is pretty much in shock and not really knowing how to take the latest news.

on a brighter note... madi will be going to disney next week! this was a family planned trip that was post poned back in sept last year. as melis has said that make a wish also came thru so madi will be going back to disney again this summer... yay madi!!! have fun sweetie, you deserve the break more than anyone else i can think of.

trickster

05-07-2008, 03:09 PM

I'm sorry to hear the latest news.

Madi and the whole family continue to be in my prayers & thoughts.

On the plus side, it is great news about the WDW trip!

dzney4lyf

06-11-2008, 08:59 AM

Miss Madi made it on the news...

http://abcnews.go.com/WN/popup?id=5039495

It's amazing how quick her hair is growing back!

POCAHONTAS

06-11-2008, 05:26 PM

Continue prayers go out to one special girl... And is she a cutey or what. I love that picture, Lori......

Lanikai

08-22-2008, 05:18 PM

Prayers and hugs for Madi and family. :grouphug:

disneydreamer98

03-13-2009, 08:26 AM

It is with a very heavy heart that I report to you all this morning that Madi has left this earth to be in heaven. She passed with her Mommy & Daddy at her side early this morning.

The Caringbridge site has further information. I have to run Parker to school, but I wanted to get this posted for everyone.

Lori, my heart is absolutely breaking for your family. If there is anything I can do, please let me know.

captainron19

03-13-2009, 09:12 AM

Reading back on the thread for the past couple of years makes it even harder than it would of hearing of such a young life lost. It makes you feel you know the little one even though you never met her.

If anything.... this world is a better place that it had such a little "trooper" that gave her all to fight a disease that she probable didnt even understand that much when first diagnosed.

If mom and dad happen to read this.... there are no words that could ease the suffering other than the fact that she is in a far better place now looking down and watching over you guys since you have done the same for her over the years.

uratoon

03-13-2009, 10:31 AM

Lori,

I am heartbroken. I wish there was something I could say to make it better, but just know that I will be praying for God to help you and your family make it through this difficult time.

If there is anything you would like me to do, please, just ask.

disneydreamer98

03-13-2009, 11:09 AM

Reading back on the thread for the past couple of years makes it even harder than it would of hearing of such a young life lost. It makes you feel you know the little one even though you never met her.

I couldn't agree more with you Ron. I said the same thing to Lori.

I just got off the phone with Lori. Her and Todd are on the road right now on their way to NY to be with their family. Obviously there aren't any type of arrangements made yet as Madi will have to go through an autopsy since she was undergoing a clinical expirmental treatment in Vermont.

Lori wanted me to thank you all for your thoughts and prayers. It means a lot to her to have this support.

Lori said that she would touch base with me next week and of course I will keep you all posted.

POCAHONTAS

03-13-2009, 01:00 PM

My heart is absolutely heart broken...
May GOD give you all strength and courage during this time. Although I didn't know Madi, just hearing you talk about her, I felt as if I knew her...

I think this shows us that we should be kind to each other, cause tomorrow is never promised to any of us.

Disneylady

03-13-2009, 02:44 PM

I am truly Heartbroken for all the Family................I,ll pray that they,ll find the strength to get through this terrible time
:pray1::babydust::pray1::babydust::pray1:

Cobweb

03-13-2009, 07:04 PM

My sincere condolences, I have always found this poem very helpful it is sad but makes me smile at the same time which I think was it's intention.

REMEMBER: Christina Rossetti (1830-1894)

REMEMBER me when I am gone away,
Gone far away into the silent land;
When you can no more hold me by the hand,
Nor I half turn to go, yet turning stay.
Remember me when no more day by day
You tell me of our future that you plann'd:
Only remember me; you understand
It will be late to counsel then or pray.
Yet if you should forget me for a while
And afterwards remember, do not grieve:
For if the darkness and corruption leave
A vestige of the thoughts that once I had,
Better by far you should forget and smile
Than that you should remember and be sad.

disneydreamer98

03-14-2009, 07:45 AM

Thanks everyone...I know that your thoughts and prayers mean a lot to Lori. I just couldn't get them all off my mind yesterday. I cannot imagine how incredibly rough and long yesterday must have been for them.

trickster

03-14-2009, 10:28 AM

That is so, so sad to hear.

As Ron said, we came to know Madi through this site and to hear this news is devastating.

My most sincere prays and thoughts are with the whole family at this very difficult time.

:pray1::babydust:

disneydreamer98

03-15-2009, 07:46 AM

There was an update on Caringbridge this morning from Wendy where she thanked everyone for their prayers and support. She also said that Madi's doctor had called with autopsy results. She passed away from the bacterial infection in her blood. She did not have any brain trauma which they were expecting due to the sudden passing. On an even more painful note, Madi's LDH level (the level that measures the activity of nb in her body) had dropped in a week from 2008 to 1100. Normal range is under 975.

The fact that the cancer treatment was working if making this even more difficult on the family. It's such a sad, sad thing.

Madi's funeral is set for Tuesday morning on March 17th.

Wendy said that they will be playing the song One Sweet Day by Mariah Carey and Boyz II Men. If you ever get a chance to listen to or read the lyrics it's clear why they choose this for their sweet little Madisyn.